Negotiating 'shared responsibility': how children and parents manage childhood asthma
Jacqueline Tudball
Social Policy Research Centre, UNSW
Contact Email: j.tudball
unsw.edu.au
The main premise of the chronic disease self-management literature (CDSM; including academic and consumer) is that the responsibility for the management of childhood asthma lies with the primary caregiver - most often parents. Yet the very nature of asthma management in children, relying primary on self-administered, inhaled medication, means that responsibility for the management of their condition is literally placed in children’s hands.
This paper reports the findings of the qualitative component of a PhD project that explored how children manage their condition - what they do, the tools they use to manage asthma, and how they negotiate and collaborate in these practices with their parents. A new model of how childhood asthma is managed demonstrates the ‘missing link’ in the childhood CDSM literature: that CDSM is socially constructed, in part by the relational interactions between children and parents.
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